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How Covid affected child brain tumour treatments

Cambridge University Hospitals Mr Ibrahim Jalloh is stood to the right of the image looking at the camera. He has black hair, slight black and grey facial hair and circle frame glasses. He is smiling and standing against a full wooden book shelf while wearing a suit.Cambridge University Hospitals
Ibrahim Jalloh, an adult and paediatric neurosurgeon specialising in tumours of the brain and spinal cord, said it was England's first investigation into the specific topic

Lessons need to be learnt from how the Covid-19 pandemic disrupted the treatment for children with brain tumours, researchers have said.

The study, led by academics in Cambridge and Lancaster, said there were five major challenges for families trying to access the healthcare system during that period.

Seeing a GP face to face was more difficult and remote consultations relied on the caregiver highlighting any "red flags", the report said.

Addenbrooke's Hospital consultant Ibrahim Jalloh said: "Findings from this study offer practical insights from families and stakeholders, to improve the healthcare system during future disruptions."

Cambridge University Hospitals Prof Rachel Isba is smiling at the camera while taking a photo of herself against a white background. She has long curly brown hair, brown eyes and is wearing a black top and red lipstick. Cambridge University Hospitals
Prof Rachel Isba, from Lancaster Medical School and Alder Hey Children's Hospital, said she hoped to see improvements

The study, which was published on Thursday in British Medical Journal Open, analysed the effects of the pandemic on the diagnosis, treatment and ongoing management of children and young people with brain tumours.

Ten children and young people, 20 caregivers and 16 stakeholders - such as nurses and neurosurgeons - were interviewed between January 2022 and June 2023.

The report authors - who included academics from Birmingham, Manchester and Nottingham - said public health messages during the pandemic sometimes led to a "reluctance to seek help".

Paediatric brain tumours were the second most common form of childhood cancers, they said.

Cambridge University Hospitals A photo of doctors wearing yellow scrubs over their blue uniform as well as masks and PPE face shields at Addenbrooke’s during Covid. The room is busy and there are several patients lay in hospital beds separated by curtains. Cambridge University Hospitals
The study was led by professionals from Cambridge University Hospitals NHS Foundation Trust and Lancaster University

The study said restrictions, which only allowed one primary caregiver to attend hospital with their child, posed challenges for families and difficulties establishing relationships with healthcare teams.

Treatments were often postponed and caregivers felt they had to "stay strong" for their child but were often traumatised by their experiences, they added.

Caregivers also experienced "isolation" and lacked guidance when returning home.

Prof Rachel Isba, a consultant in paediatric public health medicine at Alder Hey Children's Hospital in Liverpool, hoped the study could spark improvements.

"Overall, this study not only sheds light on the challenges faced by families during the pandemic but also provides suggestions for improving healthcare services to ensure a more comprehensive and effective response in times of crisis," she said.

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