'It felt like my brain was coming out of my skull'

Listen on BBC Sounds: Tom Shaw was 24 when he was diagnosed with a life-changing brain tumour

"It felt like my brain was coming out of my skull."

Tom Shaw was 24 when he began suffering from extreme headaches. But as a self-employed person who had recently bought a house he felt he "couldn't afford to be ill".

However, as his symptoms worsened Mr Shaw, from Stafford, visited the doctors on seven occasions before he was diagnosed with a brain tumour in 2007.

Now 41, the tumour has gone but it has left him unable to walk or speak. He has written a book based on his experiences and in the hope of encouraging people to not ignore early warning signs that something might be wrong.

He started writing a blog in 2010 but said he became disheartened when he realised not many people read it.

He decided to turn his story into a book - "Brain Tumours, John Bonham and Fat Pigeons", inspired by the people and experiences he encountered while in hospital, including a recurring hallucination where he thought there was a shrine to a John Bonham next to his bed.

"The book is a tale to stop other people from making the same mistakes," he said.

'Probably the end'

After feeling unwell for the entire duration of a holiday to Turkey he finally went to the doctor.

An MRI scan showed he had a low-grade hemangioblastoma, he was admitted to hospital and thought " this is it, it's probably the end".

"I was playing through the words 'we've found something' and thinking I should be reacting to this," he said.

The operation to remove the tumor, which took place at the Queen Elizabeth Hospital Birmingham, lasted 13 hours and left him in a wheelchair, unable to speak.

Tom Shaw A man in a wheelchair is sitting a table. He is looking down and is wearing a grey polo shirt with a black stripes across his chest. He has short dark hair and is sitting in a conservatory built from dark red brick. Tom Shaw
After his operation, Mr Shaw spent eight months recovering at The Haywood Hospital in Stoke

He was was later transferred to a specialist rehabilitation centre, Haywood Community Hospital in Stoke-on-Trent, where he spent eight months recovering from the surgery, as well as learning to speak again.

He said the process had been "incredibly frustrating" as he was also diagnosed with a condition called ataxia, which which affects coordination and mobility.

He added: "If you think that there is something abnormal there, don't ignore it, it won't go away".

Follow BBC Stoke & Staffordshire on BBC Sounds, Facebook, X and Instagram.